The latest news is that between the blood cultures, skin biopsies, and Joe's clinical picture, he has a type of fungus called Fusarium. It is so confusing because with skin biopsies, Fusarium and Aspergillus look the same. However with blood cultures, they look different. Fusarium is pretty rare and there is not a lot of data out there as far as treating it. Much of what is available is really depressing. Because of this, a pretty dismal picture was painted for us. We were put in high-time panic mode and there was a lot of confusion, misunderstandings, and miscommunication. The holiday weekend and the non-availability of a lot of doctors did not help matters any. We are still fighting the hardest battle ever (and we've made sure that the doctors are fighting with us too!). We are dealing with so much scary stuff. Each day is an extreme roller coaster. But honestly, I have never known a person as determined and strong-willed as Joe is right now. We also have the most amazing support system ever. Three of Joe's best friends and Joe's New Jersey parents hightailed it to Pittsburgh as soon as Joe spoke with them. Albert is in town and has been an incredible blessing. My brother is home. And duh...our parents are the best ever. Joe's friends and New Jersey parents are back home now, but it was just the greatest thing to see the smile on Joe's face...even through his oxygen mask. (Yup, he's back on oxygen.) Thank you to everyone who has been writing, calling, commenting, praying. We are overwhelmed with all of the support. Ultimately, all of our trust is in God. We believe in miracles, and our faith is unwavering.
I wanted to share a prayer that our friend Jenny Lin wrote. It is beautiful and is truly the prayer of our hearts...(thank you Jenny!)
"Dear God,
Thank you for chasing after Joe, for chasing after his heart, and for claiming Joe as your precious son. Thank you for who you created Joe to be - a gentle soul, a courageous soul, a hopeful soul, and a faithful man of God. Life dealt him a really crappy leukemia card & uprooted all of his plans, but Joe & Karen have responded by holding onto faith, holding onto your promises for a full & abundant life, holding onto YOU Lord!!!! They have always declared that you are the sole author of Joe's life, and that God Is Good, All the Time! How difficult it is to declare your goodness when life is not good!
Lord, we collectively cry out to you on Joe's behalf and ask you to HEAL him of this dreadful disease, clear his bloodstream of this fungal infection, raise up an army of white blood cells, and help his body fight back Lord!!! Pour your protection upon him Lord!!! Pour your life-giving healing into Joe's bloodstream, Lord!!! Give him a fighting chance, Lord!!! Help him declare victory over this infection, Lord. Where medicine is limited, your healing powers are infinite. We fully believe that you have the power to make miracles happen. We fully believe that you have already saved Joe's spiritual life. We declare your sovereignty over Joe and over this disease Lord. Please save Joe's physical life!!! It is by your grace alone that Joe beats this and we're begging you to protect him Lord.
God you know the deepest prayers of our hearts even when we can't articulate them. I pray for comfort for Joe, Karen, the Lins, and the Lans.
Maranatha,
-jennylin"
Monday, September 03, 2007
The Cliff note version of the Cliff note version of events.
Labels:
Aspergillus,
faith,
fungal infection,
Fusarium,
oxygen,
prayer
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19 comments:
Dear Joe and Karen, We continue to admire your strength and courage. Sending you lots of good thoughts, prayers, and an infinite supply of virtual hugs. Stay strong, knowing that you have an army of support behind you! Thinking of you constantly. Love, Lauren and Eric
Stay strong...the way is incredibly hard but your faith, strength, and love are up to the challenge. Still praying!
Evonne, Thomas, and Leah
We are praying for you each and every day.
Ariel, Kelly and Walker
What a beautiful prayer! Lots of love and prayers.
Neysa
Joe and Karen,
My prayers are still with you so often. I am so thankful that we serve a God who is so good and loving and able!! Thank you so much, Karen, for keeping us informed in the middle of all you are also dealing with. This is a horrible, terrible disease and it rears its ugly head and effect on your body too often. I wish so much I could make it go away forever from you and Amy. We will keep trusting Him with you and for you.
Praying for you. . . Anita, Amy's mom
all that and more.
thinking of you constantly.
much love,
lisabe
Our thoughts and prayers continue for you and your family.
Love
Frank & Janet
My thoughts and prayers are with you both. Thinking of you daily and sending you big, virtual hugs.
-Abby (Mouseygail)
A friend told me the symbol for C.H. Spurgeon's Pastor's College was a cross held onto by a hand. That hand was in turn held by another hand.......the meaning being I was told: We are the hand holding dearly to the cross, but in turn Christ is really holding us!..........all the while we are thinking we are holding him. He will hold you, we are praying, gigi
Joe and Karen,
We are praying for you both and we know that Joe is strong enough to beat this with you as his rock and God on his side. May you feel His strength helping you through this newest difficulty. If you need anything, anything at all, please let us know and we'll be there.
April & Paul
A beautiful prayer for a beautiful soul! Thinking of you constantly throughout the day and knowing that Joe will be healed!!
Much love-
You have our prayers. And God loves you and Joe much more than we do.
Vivian & Eric
Karen and Joe,
Oh my goodness--so much is changing so quickly. I will be praying for you both and reading the blog more frequently to keep up with the news.
Please let me know if there is anything I can do for you. You're in my thoughts and prayers.
Jen
Dear Joe & Karen,
I believe God will show the miracle very soon. We'll keep on praying.
I've been following Joe and your story for a while and I keep you both in my prayers.
Heidi
Dearest Joe and Karen, We always pray for you. We stand with you all the time. Love, David and Iju(cousin sister)
Dearest Joe & Karen,
Thinking of you and praying for you!!!
Lots of hugs and love,
Osamu & Yi-Shan
amen!! that prayer is the prayer we will continue to pray! and we will continue to believe with you that a miracle will occur!! love you!
jessica and jeremy andrews
Joe And Karen
You are in my thoughts
I am thinking about you and praying ...
GOD BLESS YOU
Phyllis
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