Sunday, August 13, 2006

Wow. I can't believe it's Sunday already! The good news is that Joe has made it through two whole weeks without any transfusions! This is a record. Very exciting. WOOHOOOOO! Today was day three of cycle two in his chemo treatment. During the first cycle, they were giving him three separate injections. This cycle, Joe was told that the Vidaza could be split into two slightly larger syringes so that he would only be getting poked twice each time. Well, since the office is closed on the weekend, we have to go to Short Stay. They have to order the Vidaza from the pharmacy...and the pharmacy has really strict protocols, and they refused to mix the Vidaza into two syringes, since they ALWAYS use three. The only way they would do two, would be if the doctors told them exactly how to do it. Since the office isn't open on weekends, that wasn't going to happen. So...yesterday and today Joe got three pokes each. Poor guy. The first round wasn't so bad, but this round he is experiencing a lot more nausea and soreness. Joe's mom gave him a great pep talk this morning, and I think that was helpful for him.

Other than that, not a lot of new news to report. :) We're just taking one day at a time!

Thank you to Eddie for the birthday gift! Joe was really excited to see the Big Ben hat and Steeler polo. I am amazed that you managed to get Joe Steelers stuff he doesn't already own!!!!! That was really nice of you - and thank you to Eric for delivering it. :) Thank you also to Jocelyn and Peter for the CDs. It was a really thoughtful gift. We're especially touched, because we know you are going through so much now too! Thank you for being so sweet. Also thank you to Lisa! She's been working on a secret little project, because she is sweet like that. I'd actually like her to share about it herself, since she deserves all bragging rights. So either check our comments...and maybe she'll share...or just SHOW UP FOR THE BONE MARROW DRIVE ON AUGUST 20th at 8711 OLD PERRY HIGHWAY, PITTSBURGH, PA 15237 and you can see what Lisa has been up to! Oh yeah, and thank you to "Santa Claus" (my dad) who washed and vacuumed my car and filled the gas tank!

Oh my goodness, I almost forgot another important announcement and thank you! Our dear friend Karin and her dear parents have been working with Anna from A3M to set up a bone marrow drive at her church. Actually, her pastor is a bone marrow donor, so he was very excited about the idea. Well, a date has been set! So if you are in the LA area, mark your calendars...

September 24
Evangelical Formosen Church East Valley
20625 La Puente Rd
Walnut, CA 91789

If you have Asian friends out there, tell them to mark their calendars too!!!!! Thank you so much Karin! Joe and I are so excited - not only about the prospect of finding HIM a PERFECT match, but also helping others find a perfect match too. Spread the word!

3 comments:

LisaBe said...

hey--the secret project is NO SECRET--shout it from the rooftops, girly!! i want to raise awareness of myelodysplastic syndrome and related conditions and of the need for marrow and peripheral blood stem cell donation and registration, and i want all of us who love you to be able to show our solidarity and support for you both, visibly! so i've designed some t-shirts, sweatshirts, stationery, buttons, and more at http://www.cafepress.com/lisabe. i can bring buttons to the drive on sunday if i order fast and pay some rush charges, but the folks having the drive in california (on my first wedding anniversary--that's GOT to be lucky!!) can definitely get some to give out (or t-shirts for volunteers, or whatever)!
i also have an evite out to a slew of folks looking for volunteers for sunday--i'll keep you posted!

Alivia's Momma said...

Hi Karen.
I wanted to share a blog with you. My friend's friend (How many steps removed can we get?) was diagnosed with AML on July 2 of this year. Her blog is really encouraging and I though you or Joe might want to read if you had some time. We are praying for you.
*Emily Haughery
here's the address
www.wilhoite.blogspot.com

Anonymous said...

hi karen and joe, just found out from susan's joe's situation. will be praying for you two. keep strong!
jurica