Last night Joe finished all of his chemotherapy. He was SO happy! Joe took it like a man, and that part is finally over.
Joe started his second dose of Thymoglobulin today. The wonderful part is that so far he is tolerating it extremely well. He has had no major side effects from it. Let's pray this continues to hold true! Apparently two other patients on the floor are receiving Thymoglobulin, and unfortunately they are not tolerating it so well. We don't know who they are, but we can surely say a prayer for them as well. It isn't easy for them, and it surely isn't easy for their families either.
Today, Joe also started taking two different anti-rejection drugs in pill form: FK5O6 and Cellcept. He will have to continue taking them for a year. Among other things he is also taking acylclovir, which he'll be on for at least 180 days. Also, avelox and diflucan which Joe will take until his neutrophil count rises again.
Tomorrow is the day! Day 0 (Zero) - Joe's new birthday. There will be no fireworks or fanfare. Just a bag of stem cells that he'll receive the same way he has received blood transfusions. That means today is Joe's last day being 100% Joe, 100% of the xy species, and 100%O+ blood type (His donor has A-type blood). This also means we need to be praying for his donor right now!!!!! This is her crazy day. After getting filgrastim injections for several days, she likely started the harvesting process this morning. The place where she is having her stem cells harvested is having her do a double donation. So she was hooked up for four or five hours this morning. She had, or will have a short break. Then this afternoon she'll be hooked up for another four or five hours. We are so incredibly thankful to this stranger for giving so much of herself so that Joe has a chance to be cured. How amazing is it that a girl of only 21 has been chosen to do something so noble, and has accepted the challenge. I imagine she has gone through so many emotions herself. She doesn't even know Joe! She is a very brave young lady. Hopefully one day, we will have the opportunity to meet her and thank her in person.
Shortly after Joe's transplant, either Tuesday or Wednesday and assuming all goes well, Joe will be able to go home. However, he'll have to return to the hospital every day for at least thirty days. Each day he'll have his blood drawn to see if he'll need any transfusions and to monitor his progress. We'll probably stay with his family initially so that we can all be together.
That's it for today's update. Thank you again so very, very much for all of the love you have sent Joe's way. It has really lifted his spirits to know that so many people are rooting for him.
When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze.
~Isaiah 43:2

4 comments:
Karen, that is one of my favorite scriptures also. It has taken on such new meaning since all this began! Truly a great promise! (Though I confess that I don't always "feel" it). What a lot of news...thanks for explaining it so well. Joe, you look "mahvelous!" Seriously, a big smile...who would believe what you have just gone through. Happy new birthday...Gretchen
i am so excited for you two :)
a little note for joe, from me and eddie from ohio:
oh, my brother, won't you stand here beside me? we shall carry each other home. and should your soul grow weary or the strength leave your bones, oh, my brother, i will carry you home.
xoxox,
lisa
Dear Joe & Karen, it was so sweet to receive photos from you today. A-fung and I are thinking of you often and pray for you 200 miles away. We marked Jan. 9th as an important day, too. Happy new birthday!
So happy to hear Joe is doing well in this process. I hope all continues to go well.
shc118
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