Sunday, January 14, 2007

All of our days are running together...

For most of the morning I kept thinking it was Tuesday, only to realize it is only Sunday. Each day is so similar, it is becoming difficult to keep track!

Just like the sun peeping through the clouds, Joe's silliness will reveal itself throughout the gloom of each day. He will say something completely ridiculous or cute that will make me laugh and reassure me that everything is going to be okay. To be perfectly honest though, the past few days have been pretty miserable for Joe. After he was discharged, he had little appetite (with the exception of Friday evening when he would sneak bits of food with a gleam in his eye.) Unfortunately, virtually everything that entered Joe would quickly exit in a most unpleasant manner. These past two nights have been rough as he has been waking up several times to dash to the restroom. Joe almost constantly feels nauseated. The drugs help, but they aren't perfect. It has been rough. It is so difficult to see Joe go through this, and I can only imagine how awful it is to live through it.

According to the doctors and the nurses though, Joe is just an average Joe. Everything he is going through is perfectly normal and expected for a post-transplant patient. It would be much more remarkable and interesting if Joe were to not experience any nausea or loss of appetite. So he pretty much just needs to bear with the blahs for a little while longer, then things should start to get better. Besides that, the doctors and nurses feel that Joe looks great considering he is five days out from a PBSC transplant. I must agree. (Not that I'm biased or anything.)

Thus far, Joe has managed to avoid any transfusions. This shouldn't last long, but we're happy to avoid them for as long as possible. Each morning we go to the hospital, Joe has his blood drawn and is given IV fluids. Yesterday, Joe didn't eat anything which was more or less suggested by the doctor. Today, he is feeling every so slightly better, and so Joe started to eat again. So far his lunch (congee/jook/rice porridge/mue/okayu/lugao/pick your favorite name...) has not made a reappearance in any form, and it's been a couple hours. This is a very good thing.

Now, Joe is happily perched on the couch, in front of the television, watching football.

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Just to go back to transplant day briefly (or not so briefly!). As I mentioned before, everything went very smoothly. The donor had her cells harvested on Monday. Joe's transplant was on Tuesday. It is really interesting, because many years ago, Joe did a summer internship in a Lab at Allegheny General Hospital. There he met a gentleman named Don. After Joe started his residency at West Penn, he had the opportunity to go back to AGH several times for rotations or conferences.

One time, Joe decided to go back to the lab where he worked and see if he still knew anyone there. Don was still there!!!! Now here is the fascinating part. This year, Don started working at West Penn in a lab where they do all things bone marrow related. Turns out, he had seen Joe's name several times but never made the connection. That is until Joe returned for his transplant. Someone referred to Joe as Dr. Lin. Then it all clicked. Don went up to visit Joe before the transplant. Then on Day 0, Don personally delivered the cells to the room, and wrote Happy Birthday on the dry erase board. Don apparently knows a bit more about Joe's donor. But being the good worker that he is, and wanting to keep his current job, he hasn't revealed anything to us. Oh well.

For transplants, doctors aim to get 4-6million cells/kilo. (I hope I'm writing this correctly!) Joe's donor provided 10 million cells/kilo. The doctor gave the go ahead to give them all to Joe. So now we hope and pray that the donor cells thrive and set up camp in Joe, and the bad cells get booted. This is all creating a temporary mess in the Land of Joseph, but temporary is the key word. None of us can wait (Joe most of all) until he engrafts (that is, when the stem cells begin to grow and make cells) and then starts to feel better.

For now, it is all about taking it easy, and taking everything one step at a time. Fortunately, we have tons of help. We are now living in Hotel Mom & Dad. It has been great since we are all together. My parents have been visiting as well to provide added support.

As usual, we are feeling the love from everywhere. I can not stress how encouraging it is for Joe to know that so many people are keeping up with his status. I know that he is lovable and one can't help but want him to hurry up and get better. Joe doesn't always realize this though. So thank you everyone for making this just a little more clear for him!

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A very Happy Birthday (a little early) to my dear pseudo-cousin Van. Have a wonderful time celebrating. Hope you find some time to relax and get pampered!

4 comments:

Anonymous said...

Thank you for finally posting an update. I was getting a little worried. Im glad all is going as well as can be expected. Since Joe is "average" according to the docs, when do they expect him to be able to eat and keep meals down? Kinda funny he had rice... you give rice and chicken broth to dogs when they dont feel well either. But they keep it down. Until the next update.....

Anonymous said...

Dear Karen,
Thanks so much for providing an update - I'm glad to hear that you're being pampered in "Hotel Mom and Dad." Give that hubby of yours a big hug from us. We hope that his appetite will return when it's supposed to and that his nausea doesn't interfere with football today!
Love, Lauren & Eric

Sara M said...

Joe & Karen,

I'm so very happy that you're back at home and on the road to recovery. It must feel like a bit of a rollercoaster to go through all this but what an exciting and hopeful time. Mike & I have been thinking and praying for you both daily... and that will, of course, continue! Keep the updates coming.

Love, Sara & Mike

Anonymous said...

Glad to see your post, you are an encouragement to those pre-transplant. God bless you both! Dave and Gretchen Allen