Day +120

Joe's rash is definitely looking better. It still covers a large part of his body, but it is lighter now. It's also dry, but Joe does not have the intense flakiness that he had to deal with the last time. Today his steroids were tapered slightly. We are thankful for this, and just keep praying that the rash continues to get better. Steroids can be great, but they can be really awful as well.

Joe's counts are still very low of course. And his blood draw from Monday morning shows that he is still CMV positive. Not really surprising considering his level of steroids. (Oh, but we were hoping for a negative!) Tomorrow we go back to the hospital and Joe will be getting a PICC line. After that he will be getting a platelet transfusion (today's count was 11 g/dL.) Joe will also begin a one week treatment of Ganciclovir twice a day. This will not help his WBC at all, but hopefully in combination with Cidofovir every other week Joe's CMV will be negative again. Having a line put in will give Joe's arms a break from being poked all the time.

That's about it.

~~~
Thank you Sheena for hanging out with us yesterday! We'll miss you.

Let us then approach the throne of grace with confidence, so that we may receive mercy and find grace to help us in our time of need.
~ Hebrews 4:16