happy happy joy joy

What a crazy trip this has all been. And yet, at every turn we keep getting greeted by blessing after blessing. Today we received the best news yet. Joe has been discharged from Short Stay for good behavior. :) What does this mean? This means that even though we haven't yet reached Day 30, we no longer have to go to the hospital every single morning. What does that mean? It means that tomorrow, we get to SLEEP IN! Joe's WBC is up to 3300. Today he was officially taken off all of his antibiotics, which significantly decreases his pill intake. Now he just needs to take two anti-rejection meds and one anti-viral med. Also, for the first time in weeks, Joe's magnesium level was in normal range. Because of the drugs he's on, the level will probably dip again. But Joe will take tablets instead of getting an IV. The truly amazing part is that for now, Joe only needs to go to the hospital twice a week. Seven days down to two is a HUGE blessing. It was supposed to be a gradual taper, but Joe has been doing so well. Praise the Lord!

Joe's mouth sores continue to improve. Nausea is rare and doesn't last too long. Joe's appetite is getting a little better, although his taste seems a bit blunted. His mouth sores have improved greatly. The only new thing is tenderness in his fingertips. His fingertips and the meaty part of his palm are red, and they are sensitive to heat and friction. The doctor said that this is a common side effect of FK5O6 (tacrolimus/Prograf) as well as Busulfan (one of the chemotherapies Joe was on pre-transplant). In time, this too shall pass.

What can I say? God is good, and all of your prayers, love, hugs, and support are apparently working. Thank you, thank you!

Wonderful news!

Going to the hospital every day has become our daily job. But it's a lot worse, because it's not fun or fulfilling. But the good news is that Joe is getting better and better each day thanks to the wonderful doctors and nurses caring for him.

We made it to the hospital today in good time, only to be greeted by a full waiting room that kept getting more and more packed. We've never seen it so busy. Our wait in the waiting room was almost a full hour. Fortunately, somebody was great enough to order Joe's meds in advance, so they were ready when we got to his room. Joe is now getting half the fluids he was previously, he is still on vanco for a few days (which has brought down his temperature, and taken away the tenderness around his port), and of course magnesium. Unfortunately, one of Joe's anti-rejection meds depletes magnesium, so even after he stops getting it IV, Joe will have to start taking it in tablet form.

Now for the wonderful news. The doctor rounding today came into the room and said, "wonderful news!" Joe's WBC (which jumped up to 376 yesterday) is 900 today! This is the real deal. His WBC should just keep jumping up now. Platelets and RBC take a little more time, but we can be patient with those. Joe hasn't seen our house in over 3 weeks now, and he is itching to go back. He's decided that Sunday will probably be the day we head out of Hotel Mom & Dad. Of course, it has been noted that we are welcome back to the "hotel" anytime. We've been really blessed to have the extra help.

Thank you Marcus for visiting Joe while you've been rotating through the hospital. You really helped the days go by faster.

Thank you Albert for the great care package! We know you are super busy, so it means a lot that you took the time and thought that went into it.